Along the SADS highway

From fainting to diagnosis:

• Fall/winter 2013: Jayden passed out during kickboxing class, initial EKG reveals abnormalities 
• January 2014: Jayden visits the pediatric cardiology team, bolter monitor shows a need for stress test in Louisville
• September 2014: Stress test at Kosairs reveals stress related arrhythmias, rhythm specialist gives initial diagnosis of CPVT, beta blockers prescribed, repeat stress test and genetic testing ordered.
• December 2014: Genetic test results confirm diagnosis
• February 2015: repeat stress test deems unfavorable results, admitted to Kosairs for med change and heart monitor, dad and sister tested for genetic markers
• March 30, 2015: stress test showed favorable results! The meds are working to the doctor's satisfaction!
• March 2015: Dad tested positive for CPVT, Family notified and stress test ordered.
• April 13, 2015: Sister tested NEGATIVE! No worries there! Family members are in the process of being tested to determine the origin of this condition.
• May/June 2015: insurance is denying requests for an AED. Fundraising efforts are underway to offset costs in purchasing a unit for Jayden.
• June 2015: free CPR event at Aurora Ross Fire station. 
• July 2015: genetics tests scheduled for paternal grandmother and father's siblings.
• August 2015: Results are in... Paternal grandmother and both siblings tested negative. Paternal grandfather is in the process of getting tested 
• July/August 2015: fundraising efforts were successful in getting Jayden's AED! We are also able to purchase an AED for another family in need!